I NEED SOMEONE/ANYONE’S HELP…?
Question by Lea Wade: I NEED SOMEONE/ANYONE’S HELP…?
Hey My Name is Lea. I’m 17 going to be 18 on April 12th. I’ve never done this before and I hate to complain but way past desperate… I was recently diagnosed with a disease called Systemic Lupus Erythematosus or (SLE). It’s an autoimmune disease, where your immune system attacks itself and eventually kills your organs one by one. I have already lost all my long curly blonde hair, which for a 17 year old girl is horrifying. I am now on treatment 3, I’ve tried Plaquenil, which 95% of patients respond but of course I’m the 5% who didn’t respond in a positive way.The SLE scale goes from 0-10, 0=in remission, and 10 equals horrible flare up. before i started the first treatment I was a 6 on the SLE scale, 1 month after my Plaquenil treatmeant I went from a 6 to a 12! Which is off the scale, which is FREAKING horrible. Then my second treatment was Methotrexate A.K.A. Chemotheropy. That still didn’t work so they upped the dose on the Chemotheropy. I’m still on this Chemotheropy treatment but it’s only getting worse, I am now immune to 8-9 antibiotics. I was so excited to hear about this new SLE treatment “Benlysta”. Benlysta has a huge succsess rate! I couldn’t stop crying I was so happy, but then I found out it costs $ 35,000 a year, because SLE is a life long disease that means $ 35,000 a year for the rest of my life (if I could afford it, let alone the first treatment/year.) I’ve wanted to become an Interior Designer ever since I was 9 years old. I’m a junior/senior in highschool. I’m in between both grades because I had to leave public highschool and become homeschooled because my immune system isn’t working so I get sick to easily. But some good new is I got accecpted into the the ART INSTITUTE OF CALIFORNIA the college I’ve wanted since I was about 12 years old haha. So it’s either college or possibly this new treatment. Basically, a short fufilled life with an amazing education for Interior Design, or a long life that’s unfufilled with no college education, which kills me to be so harsh but that’s my reality. I can’t stand the thought of choosing, so does anyone how I can raise money to pay for college & treatment so I can have a LONG & FUFILLED life? Please Help me…
Thank You for taking the time to hear me complain :/
Lea Wade
I haven’t been able to hold down the Chemotheropy pills so now I’m injecting myself every thursday… I need to raise money for this treatment so any ideas will be greatly appreciated… All I can do is pray for my savior to save me from my own body. I know God has a plan for me, but I hate this large part of his plan. But i trust the Lord and all the faith I have left in me is going to my Lord because I have all my trust in him…<3
Best answer:
Answer by angie g
Why do people think they can see the future?You are on a different road than planned u are only 17 u dowhat u have to do and play it out the best u can .Your life is number 1 do what u have to things change everyday,People die every minute and discoveries are made.Take one day at a time and live it to the best of ur ability be goodthe rest will follow and if it doesnt u will be ready for what comes next.My prayers go with u and if u believe put yourself in his hands
What do you think? Answer below!